Norske anbefalinger for oppfølging av personer med medfødt mangel på overekstremitet i form av transversal reduksjonsdefekt (en type dysmeli)

Population

Personer med medfødt mangel på overekstremitet i form av transversal reduksjonsdefekt (en type dysmeli) Medfødt fullstendig mangel på overekstremitet(er) Q71.0, Medfødt mangel på både underarm og hånd Q71.2, Medfødt mangel på hånd og fingre Q71.3, Limb Deformities, Congenital D017880, Upper Extremity Deformities, Congenital D038062, Upper Extremity D034941, Mental Health D008603, Chronic Pain D059350, Musculoskeletal Pain D059352, Artificial Limbs D001186, Exercise D015444, Self-Help Devices D012656, Automobile Driving D001334, Elective Surgical Procedures D017558, Cold Hypersensitivity C569627, Disabled Children D019988, Adolescent D000293, Child D002648, Adult D000328, Health Care Quality, Access, and Evaluation D017530, Referral and Consultation D012017, Schools D012574, Child Day Care Centers D002656, Work D014937, Education D004493, Interdisciplinary Communication D033183, Rehabilitation D012046, rehabilitation Q000534, Rehabilitation, Vocational D012050, Rehabilitation Centers D012047, Exercise Therapy D005081, Physical and Rehabilitation Medicine D010810, Physical Therapy Modalities D026741, Occupational Therapy D009788, Social Workers D000068217, Vocational Guidance D014830, Community Health Services D003153, Outcome Assessment (Health Care) D017063, Physical Functional Performance D000076604, Congenital malformation syndromes involving limbs 205812004, Congenital anomaly of limb 60475009,

Intervention

Tverrfaglig spesialisert oppfølging og behandling (habilitering og rehabilitering), alle aspekter Medfødt fullstendig mangel på overekstremitet(er) Q71.0, Medfødt mangel på både underarm og hånd Q71.2, Medfødt mangel på hånd og fingre Q71.3, Limb Deformities, Congenital D017880, Upper Extremity Deformities, Congenital D038062, Upper Extremity D034941, Mental Health D008603, Chronic Pain D059350, Musculoskeletal Pain D059352, Artificial Limbs D001186, Exercise D015444, Self-Help Devices D012656, Automobile Driving D001334, Elective Surgical Procedures D017558, Cold Hypersensitivity C569627, Disabled Children D019988, Adolescent D000293, Child D002648, Adult D000328, Health Care Quality, Access, and Evaluation D017530, Referral and Consultation D012017, Schools D012574, Child Day Care Centers D002656, Work D014937, Education D004493, Interdisciplinary Communication D033183, Rehabilitation D012046, rehabilitation Q000534, Rehabilitation, Vocational D012050, Rehabilitation Centers D012047, Exercise Therapy D005081, Physical and Rehabilitation Medicine D010810, Physical Therapy Modalities D026741, Occupational Therapy D009788, Social Workers D000068217, Vocational Guidance D014830, Community Health Services D003153, Outcome Assessment (Health Care) D017063, Physical Functional Performance D000076604, Congenital malformation syndromes involving limbs 205812004, Congenital anomaly of limb 60475009,

Comparator

Medfødt fullstendig mangel på overekstremitet(er) Q71.0, Medfødt mangel på både underarm og hånd Q71.2, Medfødt mangel på hånd og fingre Q71.3, Limb Deformities, Congenital D017880, Upper Extremity Deformities, Congenital D038062, Upper Extremity D034941, Mental Health D008603, Chronic Pain D059350, Musculoskeletal Pain D059352, Artificial Limbs D001186, Exercise D015444, Self-Help Devices D012656, Automobile Driving D001334, Elective Surgical Procedures D017558, Cold Hypersensitivity C569627, Disabled Children D019988, Adolescent D000293, Child D002648, Adult D000328, Health Care Quality, Access, and Evaluation D017530, Referral and Consultation D012017, Schools D012574, Child Day Care Centers D002656, Work D014937, Education D004493, Interdisciplinary Communication D033183, Rehabilitation D012046, rehabilitation Q000534, Rehabilitation, Vocational D012050, Rehabilitation Centers D012047, Exercise Therapy D005081, Physical and Rehabilitation Medicine D010810, Physical Therapy Modalities D026741, Occupational Therapy D009788, Social Workers D000068217, Vocational Guidance D014830, Community Health Services D003153, Outcome Assessment (Health Care) D017063, Physical Functional Performance D000076604, Congenital malformation syndromes involving limbs 205812004, Congenital anomaly of limb 60475009,

Outcomes

Medfødt fullstendig mangel på overekstremitet(er) Q71.0, Medfødt mangel på både underarm og hånd Q71.2, Medfødt mangel på hånd og fingre Q71.3, Limb Deformities, Congenital D017880, Upper Extremity Deformities, Congenital D038062, Upper Extremity D034941, Mental Health D008603, Chronic Pain D059350, Musculoskeletal Pain D059352, Artificial Limbs D001186, Exercise D015444, Self-Help Devices D012656, Automobile Driving D001334, Elective Surgical Procedures D017558, Cold Hypersensitivity C569627, Disabled Children D019988, Adolescent D000293, Child D002648, Adult D000328, Health Care Quality, Access, and Evaluation D017530, Referral and Consultation D012017, Schools D012574, Child Day Care Centers D002656, Work D014937, Education D004493, Interdisciplinary Communication D033183, Rehabilitation D012046, rehabilitation Q000534, Rehabilitation, Vocational D012050, Rehabilitation Centers D012047, Exercise Therapy D005081, Physical and Rehabilitation Medicine D010810, Physical Therapy Modalities D026741, Occupational Therapy D009788, Social Workers D000068217, Vocational Guidance D014830, Community Health Services D003153, Outcome Assessment (Health Care) D017063, Physical Functional Performance D000076604, Congenital malformation syndromes involving limbs 205812004, Congenital anomaly of limb 60475009,

Sykehuset Innlandet HF, Avdeling for Fysikalsk medisin og rehabilitering, Ottestad